Mothers’ perspectives on challenging behaviours in their children with fragile X syndrome
نویسندگان
چکیده
منابع مشابه
Communication in young children with fragile X syndrome: a qualitative study of mothers' perspectives.
PURPOSE To provide descriptive and qualitative information about communication in young children with fragile X syndrome (FXS) and about how families react to and accommodate communication differences in their children. METHOD In-depth interviews were conducted with 55 mothers of young children with FXS. Interviewers asked mothers to describe their children's communication, strategies they us...
متن کاملCharacterising repetitive behaviours in young boys with fragile X syndrome.
BACKGROUND Repetitive behaviours are frequently observed in individuals with intellectual disability (ID). The present study examined the profile, inter-correlations and predictive correlates of repetitive behaviours in boys with fragile X syndrome (FXS), the leading inherited cause of ID. Specific child characteristics examined as predictors included anxiety, nonverbal cognition and autism soc...
متن کاملFactors associated with parenting stress in mothers of children with fragile X syndrome.
Whereas previous research has demonstrated elevated levels of parenting stress in parents of children with general developmental disability, there has been little investigation of stress in parents of children specifically affected by the common neurogenetic disorder fragile X syndrome (FraX). This study elucidates stress profiles in mothers of children with FraX and delineates the contribution...
متن کاملPredictors of stress in mothers and fathers of children with fragile X syndrome.
This study examined parental and family stress and functioning where there is a child with fragile X syndrome. Mothers and fathers in 40 families were asked about their child with fragile X syndrome, family supports, their psychological stress, the marital relationship, and their family stress. Results indicate parents were well adjusted in terms of their levels of psychological stress and in t...
متن کاملDifferential sensitivity to life stress in FMR1 premutation carrier mothers of children with fragile X syndrome.
OBJECTIVE The premutation of the FMR1 gene (defined as between 55 and 200 CGG repeats) is estimated to affect 1 in 149 females and 1 in 643 males, and some people who carry the FMR1 premutation display signs of impairment. METHOD This study focuses on 82 premutation carrier mothers (M age = 51.4 years; SD = 7.7) of adolescent and adult children with fragile X syndrome (FXS). A Gene × Environm...
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ژورنال
عنوان ژورنال: Journal of Intellectual & Developmental Disability
سال: 2018
ISSN: 1366-8250,1469-9532
DOI: 10.3109/13668250.2018.1496379